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Thread: Pediatric patient with marfan syndrome

  1. #1
    OptiBoard Apprentice
    Join Date
    Jun 2016
    Edmonton, AB
    Dispensing Optician

    Pediatric patient with marfan syndrome

    Hi all, This might be my first post here, but I've been a lurker forever. Hi!

    I have a pediatric patient with Marfan syndrome and his optical needs are great. He presented as a rapidly progressing myope, but because of issues with the connective tissue holding his lens, and a lensectomy, he is now very hyperopic. It's been a while since I have dealt in the world of high plus lenses, and I want to make sure we are doing our best for this patient. I live in Canada and have access to Zeiss, Essilor and Shamir lenses at the moment. We are waiting for his eyes to settle down post surgery, then hi will likely be in a ft bifocal for the foreseeable future. I would love advice that doesn't include CL's because we aren't there quite yet.

  2. #2
    OptiBoard Apprentice
    Join Date
    May 2022
    Dispensing Optician
    Hi Julia,

    I have dispensed a few aphakic lenses to elderly low vision patient, so I'll give you the tidbits I have. Like many extreme scripts, close fitting, round frames which centre the eye are best. I've ordered with Essilor for the "Omega Round 22" which is their aphakic bifocal, usually lead time has been a couple of months. The few high hyperopic pediatric patients I have dispensed to I have gone with Nano Vista frames, personally I like them best for these cases.

    The University of Waterloo centre for sight enhancement might be worth reaching out to if you have more specific questions. Even by email they are usually pretty quick to respond.

    Hope you is helpful for you.

  3. #3
    Master OptiBoarder OptiBoard Silver Supporter
    Join Date
    Jul 2002
    Wauwatosa Wi
    Dispensing Optician
    Best vision with a spectacle lens for aphakia will be with Essilor's Super Modular. What's the Rx?
    Roberts Optical Ltd.
    Wauwatosa Wi.
    Science is a way of trying not to fool yourself. - Richard P. Feynman

    Experience is the hardest teacher. She gives the test before the lesson.

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